I can sum up the 92 days between March 2 and June 2 with a roster of numbers.
92 days that I was personally, financially and at times physically responsible for my older brother with autism
76 days between my mother's first hospitalization and her death
35 days I spent in Indiana caring for my brother and tending to my mother's needs
29 nights I slept in my childhood home
22 days my mother spent in a private caregiver home under Hospice care
16 days Mom was cared for in a Hospice facility
8 dedicated caregivers and social workers who helped my brother find his new home
5 phone calls and meetings to ensure my brother's Medicaid benefits wouldn't be cut off
3 exceptional caregivers who were constantly checking in, offering help and coming to our rescue
2 roommates my brother has in his new supported living home
1 funeral
At every point over those 92 days, when a door closed, a window opened. When Mom needed to leave the hospital a spot was open at a Hospice facility. When she was no longer eligible for 24/7 in-patient Hospice care because her condition improved somewhat, the only Hospice bed in the best private caregiver home in the area opened up. My drives to Indiana were never interrupted by snow or car trouble.
During this time I was frustrated by the pace of action by doctors, hospital and bureaucrats. I was astonished by how people I'd never met before went out of their way to help my brother. I was moved to tears by the way Hospice and end-of-life caregivers tended to my mother in her last weeks and am convinced that they are angels walking on earth. I was disappointed by some people in my life who stayed away, as though dying was contagious and my family's troubles were too painful to acknowledge, or those who didn't do what they should have. I was amazed by some people who I never would have expected to help stepped in, stepped up and took care of things. And I felt the power of all the prayers aimed in our direction.
More than anything I realized how precious my husband and children are. During the 29 nights I stayed in Indiana caring for my brother, I had never felt so alone. I realized how important it is just to have them around for me to feel safe, secure and supported. And they were real troopers, pitching in, helping out, and most of all, understanding when I had to leave suddenly, not knowing when I would return.
There are people I will never be able to thank enough. My nephew, who cared for my brother when I returned to Michigan each week. The owner of the caregiver home who was with my mother when she died, and who spent countless hours talking to her, playing her music and making sure she wasn't alone. My uncle, who was with my mother every single day even though it hurt him terribly to see her that way. And the amazing people who found my brother a new home where he's thriving.
My younger brother and I and are are settling her affairs, selling her house and going through the remnants of her life.
And grieving. Now, there's time for that.
But I do so knowing I did all I could to help my Mom travel as comfortably as possible from this world to the next, and helped my brother move safely from his old life to his new.
June 3 was the beginning of the next chapter of all of our lives.